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PHO members are early-career and experienced researchers, clinicians, and others from around the world using PROMIS to promote the voice of the patient in clinical care, research, and quality improvement.

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SAVE The Date!

22-23 October 2026

The 12th Annual PROMIS
International Conference

Prague, Czech Republic

Watch for more information

Thanks for making the conference a success!

The 11th Annual
PROMIS International Conference

Leveraging the Patient Voice from
Clinical Decision-making to Policy:
The Value of PROMIS


October 26-28, 2025
Milwaukee, Wisconsin   

Join us for the 2026 Training Workshop:  Fundamentals of PROMIS

New Online Format - A 3  Part Series 

The goal is to help you connect the dots – from fundamentals to putting PROMIS into practice.

Using a seminar model, this new online training workshop is designed for clinicians, researchers, health system leaders, and quality leads interested in getting started with PROMIS.

Program Chairs:
Nan Rothrock, PhD, Feinberg School of Medicine, Northwestern University, Chicago

Brocha Stern, PhD, OTR, Icahn School of Medicine at Mount Sinai, New York

Learn and Engage in Three Live Webinar Modules

1.  Selecting the Right PROMIS Measure(s) for You

2. Optimizing Clinician and Patient  Engagement  in PROMIS Collection and Use

3.  Making  Sense of PROMIS Scores

Get Published!  Submit your research to the official journal of the PROMIS Health Organization


Abstracts from the 2025 PROMIS International Conference in  Milwaukee will be published in December 2025.

Author fees waived through 2026.


The journal considers original educational papers, current concepts, study protocols, research manuscripts, (systematic) reviews, commentaries on articles, and letters to the editor. The journal also publishes editorials, special issues, and conference abstracts.

Congratulations to the Trainee Best Poster Winners!

The 11th Annual PROMIS International  Conference
October 26-28, 2025  - Milwaukee

Best Clinical Poster
Electronic patient-reported outcome measures (ePROMs) for triaging and scheduling outpatient appointments: A systematic review
Chen He, MBBS, MRCP (UK)

National University Hospital
Singapore, Singapore

Best Psychometric Poster
The PROPr and QLU-C10D are more responsive to change than the EQ-5D-5L in cancer patients

Antje Förster, MD
Charité – University Medicine
Berlin, Germany

Thanks for making this year's conference a success!

The 11th Annual PROMIS International Conference
Leveraging the Patient Voice from Clinical Decision-making to Policy: The  Value of PROMIS
October 26-28, 2025- Milwaukee

Check out the APRO Articles 

www.advancesinPRO.org

Measuring Health-Related Quality of Life During Pregnancy:  A Prospective Cohort Study
Jason H. Raad, Polly McCracken, Janel Hanmer

Validity evidence for the Patient Reported Outcome Measuresment Information System (PROMIS) Cognitive Screener (PRO-CS) to detect risk for cognitive decline as part of the Medicare Annual Wellness Visit

Manrui Zhang, Anthony Rodriguez, Rebecca Weir, Janel Hanmer, Jordan M. Harrison, Maria O. Edelen

Crosswalk between PROMIS computer adaptive tests and numerical rating scales in cancer patients: Anxiety, depression, pain interference, physical function

M.K. Lee, X. Tang. D. Cella. V. Grzegorczyk, K.J. Ruddy, A.L. Cheville

The relationship between social media use and loneliness across the lifespan in the United States: Population-based study using Health Information National Trends Survey data

Christian E. Vazquez, Derek Falk, Dana P. Urbanski, Katherine Kwong, Diana Abudu-Birresborn, Juanita-Dawne Bacsu, Moka Yoo-Jeong, Hye Won Chai, Wonkyung Jung, Matthew Lee Smith

Brief report: Relationship of fraility and age with nonresponse to patient reported outcome measures

Claire R. Morton, Zara R. Cooper, Ronald Bleday, Jennifer E. Fanning, Jill Steinberg, Chengbo Zeng, Andrea L. Pusic, Jason B. Liu

New Publications

Langer MM, Nesbit KC, Dien A, Jaramillo T, Pak SS. Content analysis of PROMIS physical function banks using the international classification of functioning, disability and health. Qual Life Res. 2025 Sep 25. doi: 10.1007/s11136-025-04071-1. Epub ahead of print. PMID: 40996686.

The authors mapped the items of the PROMIS Physical Function v2.0 bank and the sub-banks of Mobility v2.1 and Upper Extremity v2.1 to the International Classification of Functioning, Disability, and Health (ICF). Across all three banks, the largest proportion of items were mapped to the D4 Mobility ICF chapter. There was moderate representation of the D5 Self-care chapter and minor representation of the D6 Domestic Life chapter in the Physical Function and Upper Extremity item banks. Refer to the article for full details on the mapping results. These findings can enhance interdisciplinary communication and facilitate broader adoption for those who may be unfamiliar with these measures.

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Bowling CB, Sloane R, Faldowski RA, Pieper CF, Brown TH, Dooley EE, Burrows BT, Bhatt AS, Lloyd-Jones DM, Lewis CE, Pettee Gabriel K. Association of multimorbidity trajectories from early adulthood through middle age with middle-age physical function. J Gerontol A Biol Sci Med Sci. 2025 Sep 19;80(10):glaf140. doi: 10.1093/gerona/glaf140. PMID: 40580466; PMCID: PMC12449251.

The authors examined the association between membership in a longitudinal multimorbidity trajectory group (developed using a latent growth curve model of chronic condition accumulation in young to middle age) and a cross-sectional assessment of physical function in middle age. Physical function was assessed using PROMIS Physical Function Short Form 20a and several performance-based tests whose scores were summarized as a composite score. Both patient-reported and performance-based physical function were lower in those with earlier and more rapid accumulation of chronic conditions (Late 20s-Fast and Mid 20s-Fast) compared to Early 50s-Slow trajectories.

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Sharma D, Viana Rodriguez GM, Lai CW, Asif B, Talvacchio S, Yang AH, Vittal A, Derkyi A, Koh C, Wright EC, Marini JC, Heller T. Gastrointestinal complaints in patients with osteogenesis imperfecta: The bright side of a rare genetic disorder. Bone. 2025 Nov;200:117589. doi: 10.1016/j.bone.2025.117589. Epub 2025 Jul 9. PMID: 40645259.

The authors used PROMIS questionnaires to assess gastrointestinal symptoms in a sample of 41 individuals with the rare disease of osteogenesis imperfecta. Participants also received a gastroenterology consultation. Adult measures were used for all participants. Generally, there were no differences in gastrointestinal symptoms compared to the general population although symptoms increased with age and worse scoliosis.

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Perez NB, Gordillo Sierra P, Taylor B, Fletcher J. Selecting a depression measure for research: A critical examination of five common self-report scales. J Affect Disord. 2025 Oct 26;394(Pt A):120542. doi: 10.1016/j.jad.2025.120542. Epub ahead of print. PMID: 41151722.

The authors did a critical appraisal of commonly used patient-reported questionnaires for depression using COSMIN criteria: Beck Depression Inventory (BDI), Center for Epidemiological Studies Depression (CES-D), Hospital Anxiety and Depression Scale (HADS), Patient Health Questionnaire (PHQ-9), and PROMIS Depression. Only the PROMIS Depression had a rating of adequate or very good on all measurement properties. It was the only measure that achieved at least an adequate rating on structural validity and internal consistency.

 

PROMIS®, Patient-Reported Outcomes Measurement InformationSystem®, and PROMIS logo are registered trademarks of the U.S. Department of Health and Human Services (HHS).

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