Plan now for
The 11th Annual PROMIS International Conference
Leveraging the Patient Voice from Clinical Decision-making to Policy: The Value of PROMIS
October 26-28 - Milwaukee
Conference Program Chairs
J. Devin Peipert, PhD
University of Birmingham, UK
Anne Thackeray, PhD, PT, MPH
University of Utah, USA
Call for Abstracts is open!
Submit by April 18
Share your research with colleagues from around the world who share your passion.
Attention Trainees!
Apply for a Conference Scholarship
Deadline April 18
The PHO is offering scholarships for trainees to participate in this conference. Since 2019, the PHO has awarded 45 scholarships to participate in its annual international conference.
Eligibility: Graduate students, masters, PhD, medical school, residency, fellowship
Applicants for a scholarship must submit an abstract for the conference.
Get published in the PHO's new journal
Author fees waived through 2026.
Click to learn more.
The journal considers original educational papers, current concepts, study protocols, research manuscripts, (systematic) reviews, commentaries on articles, and letters to the editor. The journal also publishes editorials, special issues, and conference abstracts. Learn more about the types of content the journal will consider for publication.
Register for PHO's Free Webinar
Common Metrics vs. Measures: PROMIS Physical Function as an Exemplar
Monday, April 14, 2025, 10-11 am CT
Presenters:
Aaron Kaat, PhD
Northwestern University, Chicago, USA
Gregor Liegl, PhD
Charité – Universitätsmedizin Berlin, Germany
Moderator: Jason Raad, PhD
University of Pittsburgh Medical School, USA
There are many different outcome measures that quantify the same or similar constructs. This heterogeneity makes it challenging to conduct large-scale research and quality measurement. Requiring uniformity of measure selection may not always be practical. Instead, measures can be placed on the same metric, allowing commensurate scoring.
This presentation will use PROMIS Physical Function T-score metric as an exemplar metric on which scores from other measures can be placed and commonly understood. Both linking of other patient-reported outcome measures and performance-based measures will be discussed.
New Publications
(click to see more)
Flores AM, Shah M, Bedjeti K, Franklin PD, Peipert JD, Garcia SF, Lancki N, Webster KA, O'Connor M, Cella D. Risk of significant functional impairment across cancer diagnosis and care continuum. Cancer. 2025 Jan 1;131(1):e35571. doi: 10.1002/cncr.35571. Epub 2024 Sep 19. PMID: 39297349; PMCID: PMC11694161.
The authors looked at baseline physical function impairment in oncology patients enrolled in a pragmatic trial of engagement with cancer PROs. PROMIS measures analyzed in this study included PROMIS Physical Function, Pain Interference, and Fatigue. Overall, participants reported mild functional impairment, but 40% had moderate or severe impairment. Additionally, 17% had moderate or severe fatigue or pain interference. Impairments were generally greatest in the noncurative group. There were strong correlations between the domains, with co-occurence of symptoms. Findings support an unmet need and the importance of routine screening.
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Northrop A, Christofferson A, Umashankar S, Melisko M, Castillo P, Brown T, Heditsian D, Brain S, Simmons C, Hieken T, Ruddy KJ, Mainor C, Afghahi A, Tevis S, Blaes A, Kang I, Asare A, Esserman L, Hershman DL, Basu A. Implementation and impact of an electronic patient reported outcomes system in a phase II multi-site adaptive platform clinical trial for early-stage breast cancer. J Am Med Inform Assoc. 2025 Jan 1;32(1):172-180. doi: 10.1093/jamia/ocae190. PMID: 39158353; PMCID: PMC11648710.
The authors describe the development and implementation of an electronic patient reported outcome system to collect quality of life and adverse events as part of a phase II multi-site trial in oncology, which includes 10-year longitudinal monitoring. Measures included PROMIS Pain Interference, Sleep Disturbance, Physical Function, Anxiety, Depression, Fatigue, Cognitive Function, Social Roles, and Sexual Interest/Function. The paper describes the technology solution, operational considerations, as well as monitoring of progress. Patients who completed the initial PROs had an overall higher completion rate. Additionally, those with higher baseline social functioning were more likely to have overall higher PRO completion rates. Electronic completion did not differ by age.
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Edelen MO, Hays RD, Herman PM. Introducing the PROMIS-16 profile 1.0. Qual Life Res. 2025 Jan 20. doi: 10.1007/s11136-024-03885-9. Epub ahead of print. PMID: 39831935.
The authors introduce a series of papers in Quality of Life Research describing the PROMIS 16-item profile, which is a brief measure for pragmatic completion that assesses 8 quality of life domains: physical function, cognitive function, ability to participate in social roles, pain interference, fatigue, sleep disturbance, depression, and anxiety. It can be pragmatically useful as a screen while supporting more targeted in-depth assessment of specific domains.
Thank You to Our
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