FREE Webinar
Integrating PROMIS in Arthritis Care and Research
March 24 (Tuesday) 8:00-9:00 am CT
Presenter:
Clifton Bingham, Â MD, PHO President
Professor of Medicine, Division of Rheumatology, Johns Hopkins University, Baltimore, MD USA
Emplify Health, Green Bay, WI USA
This session will discuss how Dr. Bingham's group has integrated PROMIS measures into the routine care of patients with rheumatoid arthritis over the last 10 years.
We will cover the following aspects of using PROMIS measures:
4) Use of PROMIS measures in registries and clinical trials
Submit your research
to the official journal of the
PROMIS Health Organization
Author fees waived through 2026
Now pulished in APRO:
Abstracts from the 2025 PROMIS International Conference in  MilwaukeeÂ
The journal considers original educational papers, current concepts, study protocols, research manuscripts, (systematic) reviews, commentaries on articles, and letters to the editor. The journal also publishes editorials, special issues, and conference abstracts.
Thanks for making
the 2025 Conference a Success!
The 11th Annual PROMIS International Conference
Leveraging the Patient Voice from Clinical
Decision-making to Policy: The Value of PROMIS
October 26-28, 2025 - Milwaukee
Congratulations
to the Trainee Best Poster Winners!
Best Clinical Poster
Electronic patient-reported outcome measures (ePROMs) for triaging and scheduling outpatient appointments: A systematic review
Chen He, MBBS, MRCP (UK)
National University Hospital, Singapore
Singapore
Best Psychometric Poster
The PROPr and QLU-C10D are more responsive to change than the EQ-5D-5L in cancer patients
Antje Förster, MD
Charité – University Medicine
Berlin, Germany
Item Response Theory
New Online IRT Course
This basic online course on IRT, presented in English by faculty at the Amsterdam University Medical Centers, focuses on the conceptual understanding of IRT. The course consists of 5 half days with an alternating series of lectures, R code practice, small working groups, and discussion.Â
Faculty are members of the Dutch-Flemish PROMIS National Center and include some examples from PROMIS item bank development.
For details, see https://www.epidm.nl/en/course/item-response-theory
Note: The PROMIS Health Organization is not a sponsor of this program and has not reviewed its content.Â
New Publications
Benecke RM, Williams ZJ, Holmes LG, Miller JS, Kaplan-Kahn EA. Measurement Invariance of the PROMIS Family Relationships Scale Among Autistic and General Population Adolescents. Autism Res. Published online January 8, 2026. doi:10.1002/aur.70161
This study examined whether the PROMIS Family Relationships scale, validated for general population adolescents, can measure family relationship quality in autistic adolescents. Results showed the scale measures the same construct in both general and autistic adolescent groups demonstrating scores can be meaningfully compared. This validation supports using the self-report PROMIS scale to directly capture autistic teens' perspectives on family relationships, rather than relying on parent proxy reports, which may be biased or limited. The study highlights the importance of self-report in autism research.
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Briggs MS, Lapin B, Li Y, et al. Patient Reported Outcomes Measures Information System (PROMIS) Physical Function and Common Performance-Based Measures of Function in Patients With Neurologic Conditions in Outpatient Rehabilitation. Physiother Res Int. 2026;31(1):e70159. doi:10.1002/pri.70159
Briggs et al. evaluated the relationship between the PROMIS Physical Function (PF) and three common performance-based functional measures (Timed Up and Go, 5 Times Sit to Stand, and 10-Meter Walk Test) in patients with neurologic conditions receiving outpatient physical therapy. Results showed moderate to strong correlations between PROMIS PF and performance-based functional measures. Findings suggest that PROMIS-PF and performance-based measures provide complementary but different information about physical function highlighting the importance of using both self-reported and performance-based assessments to fully understand patient function and guide rehabilitation.
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Chan YN, Ardalan K, Lin L, et al. Congruence Between Child Self-Reported and Caregiver-Proxy-Reported Health-Related Quality of Life in Children With Juvenile Idiopathic Arthritis and Systemic Lupus Erythematosus. J Rheumatol. Published online January 15, 2026. doi:10.3899/jrheum.2025-0598
 This longitudinal study examined the congruence between child self-reported, and caregiver-proxy reported health-related quality of life in children with juvenile idiopathic arthritis or childhood-onset systemic lupus erythematosus, using PROMIS Pediatric and Parent Proxy measures over twelve months. Moderate agreement was found in physical domains including mobility, physical activity, fatigue, and pain interference. Psychosocial domains, such as family relationships and anxiety, showed weaker agreement. Caregivers tended to report worse symptoms and lower functioning than children reported themselves. The study highlights that while caregiver reports complement physical assessment, child self-report is important.
PROMIS®, Patient-Reported Outcomes Measurement InformationSystem®, and PROMIS logo are registered trademarks of the U.S. Department of Health and Human Services (HHS).
