We look forward to seeing you in Prague!Â
The 12th Annual
PROMIS International Conference
22-23 October 2026
Thank you to everyone who submitted abstracts and scholarship applications for the annual conference in October in Prague. The Board of Directors is pleased to report that the number of abstracts received this year exceeded previous years. Also, the number of scholarship applications received to attend the conference increased by 50% over last year.Â
Learn. Share. Engage.
Plenaries, Oral Papers, Poster Hall, Roundtables, Welcome Reception, Mentoring, and more.
Click for Schedule at a Glance
Register Now! Advance Registration is open.Â
JOIN US for the upcoming free webinar
An Evaluation of Existing Patient-Reported Outcome Measures for Use in Long COVID Trials: A Qualitative Study
September 23 (Wednesday), 9-10 am CT
Long COVID is a relatively new yet devastating phenomenon. Existing measures repurposed from other conditions could facilitate rapid evaluations of needed treatments, but they currently lack sufficient validity evidence in the Long COVID population. As part of the Researching COVID to Enhance Recovery Clinical Trials (RECOVER-CT) initiative, we conducted a qualitative study to evaluate item comprehension and content coverage of selected patient-reported outcome measures (PROMs) for use in Long COVID clinical trials. Due to the heterogeneous experience of patients with Long COVID, we evaluated content coverage of the selected PROs as a set.
Presenter: Christina Zigler, PhD, MSEd
Associate Professor, Physical Medicine and Rehabilitation, University of Pittsburgh School of Medicine
Moderator: Jason Raad, PhD, University of Pittsburgh
Now is the time to submit your paper to APRO!
Article Publishing Charges (APCs) are waived for all submitted articles on or before 31st December 2026.Â
APRO Special Issues: Â Call for Papers
Extended deadline October 21
1) Methodological Advances in the Measurement of Patient-Reported Outcomes
2) Patient-Reported Outcomes Where It Counts: Implementation and Impact in Clinical Care
Advances in Patient-Reported Outcomes (APRO), the official journal of the PROMIS® Health Organization, is an open access, peer-reviewed, international, multidisciplinary journal offering rapid publication of scientifically accurate, timely, and relevant clinical and methodological content that advances the science and application of patient-reported outcome measures (PROMs).
New Publications
de Oliveira Marreiros DJ, Lokhorst MM, Young-Afat DA, et al. Measuring health-related quality of life in patients with peripheral vascular malformations with PROMIS® computerized adaptive tests. J Plast Reconstr Aesthet Surg. 2025;106:401-408. doi:10.1016/j.bjps.2025.05.036
This prospective cohort study examined adults with vascular malformations to determine if PROMIS CATs can reliably measure HRQoL for this patient population. 123 patients completed at least one CAT and 55 patients completed the retest of a least one CAT. Reliability for test-retest was quantified by intraclass correlation coefficients, with an ICC >/= to 0.77 being considered adequate. Standard errors of measurement and smallest detectable change were also calculated. Of all patients sampled, all achieved an ICC above 0.85, SEM under 5 points and SDC around 10 points. This study indicated adequate test-retest reliability and measurement errors. In adults with vascular malformations, PROMIS CATs are reliable for measuring physical, mental and social HRQoL outcomes.
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Yakdan S, Frumkin MR, Javeed S, et al. Defining Substantial Clinical Benefits of PROMIS Pain Interference and Physical Function in Patients Undergoing Lumbar and Thoracolumbar Spine Surgery. Spine (Phila Pa 1976). Published online January 30, 2025. doi:10.1097/BRS.0000000000005276
This prospective study was the first to define Substantial Clinical Benefit (SCB) thresholds for PROMIS Physical Function (PF) and PROMIS Pain Interference (PI) in the thoracolumbar/lumbar spine surgery population. The study included 137 patients age 21-85yo with a numeric rating of back pain of at least 3/10, undergoing lumbar/thoracolumbar surgery for degenerative spine disease. SCB thresholds were calculated using anchor-based methods with ODI and NASS index as anchors, with ROC analysis used to determine optimal SCB cutoffs. The thresholds defined in this study will assist in evaluating patient outcomes for spine surgery.
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Austenfeld EM, Sabbagh SE, Liegl M, et al. PROMIS displays strong construct validity in pediatric and adult patients with idiopathic inflammatory myopathies. Rheumatology. 2026;65(1):keaf502. doi:10.1093/rheumatology/keaf502
Austenfeld et al studied the validity of PROMIS for juvenile and adult onset idiopathic inflammatory myopathies (JIIM/IIM) to examine if there were any associations with disease characteristics and assessments. The study administered PROMIS-49 or -57 assessments by 70 parents, 49 pediatric patients and 61 adult patients with IIM. Legacy health related quality of life (HRQoL) instruments were used to evaluate construct validity. This study concluded that PROMIS offers a view of HRQoL measures that is more nuanced, and may be more sensitive than legacy HRQoL measures, and support incorporating PROMIS in the assessment of IIM/JIIM.
PROMIS®, Patient-Reported Outcomes Measurement InformationSystem®, and PROMIS logo are registered trademarks of the U.S. Department of Health and Human Services (HHS).
