Benecke RM, Williams ZJ, Holmes LG, Miller JS, Kaplan-Kahn EA. Measurement Invariance of the PROMIS Family Relationships Scale Among Autistic and General Population Adolescents. Autism Res. Published online January 8, 2026. doi:10.1002/aur.70161

This study examined whether the PROMIS Family Relationships scale, validated for general population adolescents, can measure family relationship quality in autistic adolescents. Results showed the scale measures the same construct in both general and autistic adolescent groups demonstrating scores can be meaningfully compared. This validation supports using the self-report PROMIS scale to directly capture autistic teens' perspectives on family relationships, rather than relying on parent proxy reports, which may be biased or limited. The study highlights the importance of self-report in autism research.

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Briggs MS, Lapin B, Li Y, et al. Patient Reported Outcomes Measures Information System (PROMIS) Physical Function and Common Performance-Based Measures of Function in Patients With Neurologic Conditions in Outpatient Rehabilitation. Physiother Res Int. 2026;31(1):e70159. doi:10.1002/pri.70159

Briggs et al. evaluated the relationship between the PROMIS Physical Function (PF) and three common performance-based functional measures (Timed Up and Go, 5 Times Sit to Stand, and 10-Meter Walk Test) in patients with neurologic conditions receiving outpatient physical therapy. Results showed moderate to strong correlations between PROMIS PF and performance-based functional measures. Findings suggest that PROMIS-PF and performance-based measures provide complementary but different information about physical function highlighting the importance of using both self-reported and performance-based assessments to fully understand patient function and guide rehabilitation.

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Chan YN, Ardalan K, Lin L, et al. Congruence Between Child Self-Reported and Caregiver-Proxy-Reported Health-Related Quality of Life in Children With Juvenile Idiopathic Arthritis and Systemic Lupus Erythematosus. J Rheumatol. Published online January 15, 2026. doi:10.3899/jrheum.2025-0598

 This longitudinal study examined the congruence between child self-reported, and caregiver-proxy reported health-related quality of life in children with juvenile idiopathic arthritis or childhood-onset systemic lupus erythematosus, using PROMIS Pediatric and Parent Proxy measures over twelve months. Moderate agreement was found in physical domains including mobility, physical activity, fatigue, and pain interference. Psychosocial domains, such as family relationships and anxiety, showed weaker agreement. Caregivers tended to report worse symptoms and lower functioning than children reported themselves. The study highlights that while caregiver reports complement physical assessment, child self-report is important.